The pathology report came in: Sarcoidosis verified! I guess that puts me back at 2039 days cancer free :)
I sort of feel like the original "boy who cried wolf." Except, I have to explain to the villagers that "Well, there wasn't actually a wolf. It's just that the doctor's thought it was far more likely than sarcoidosis." Still, better to be wolf-free and a bit embarrassed than the other way around.
Sorry for the delay in putting this out there. After finding out, it was as if all my stress/worry was somehow supporting me. When it goes away, it takes a few days to re-adjust and re-orient oneself. It's kind of like after finals, but more intense.
Anyhow, I have a followup appointment with my oncologist on Monday. She's going to set me up with a lung doctor. Even though there isn't a problem in my lungs, these doctors are apparently also sarcoidosis specialists, so they should be the best at figuring out next steps.
I also have a followup with my surgeon on Wednesday. Hopefully they'll outline how long it'll take to heal/recover from the surgery. I still feel like I have a sort of golfball in my throat. It's rather annoying, but not painful or swelling or anything. From what I gather, it's just scar tissue that'll take a while to go away. Bah.
Sunday, June 22, 2014
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Check out this military veteran's experience with sarcoidosis.
http://thealternativepress.com/articles/my-sarcoidosis-journey-from-the-persian-gulf-to
My husband was diagnosed with NHL in late 2011 and went through an auto-SCT at Stanford in mid-2012. Through that process, your blog was a source of information and hope for both of us. I periodically check it because some crazy part of me thinks our fates are intertwined. "If Austin is ok, we will also be ok," goes the little irrational subconscious voice. When I saw that you were posting again, I was so nervous! Having been through a few less intense scares, I can imagine what you have been going through. I wish you the best in your treatment for sarcoidosis and thank you from the bottom of my heart for your amazing blog.
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