Until my last post, I was convinced I either had a relapse or a new sort of cancer. Here's why:
- All the symptoms I previously associated with lymphoma. Night sweats, itching, plus mild fevers/fatigue. Of course, these symptoms can also be symptoms of sarcoidosis.
- The metabolism of the lymph nodes (SUV) was around 16. My surgeon told me this was unusually high for sarcoidosis, so he felt cancer was more likely here.
- Given my symptoms and my history, my oncologist also felt that relapse/cancer was more likely. It also said this on my PET/CT report.
The funny thing was, in my last post, I felt a million times better because I thought I had presented with erythema nodusum. It turns out that it was just a pimple! Oh well, even though it was unfounded, the injection of faith had very good timing.
Just five more days and we'll have definitive results. Fingers crossed, but I'm optimistic! What an emotional roller coaster this week has been!
6 comments:
Emotional roller coaster is putting it *mildly*. Fingers crossed for more good news. :)
Let's not forget April 2011, when Austin had lots of itching signs, and eventually got a scan. That time, the itching seemed to resolve itself on its own. No allergen was ever found. This time it's more severe, but it's reasonable to think that it is the same thing -- and this time the sarcoidosis is more severe, causing more symptoms and a big indication on the scan. It is the height of coincidence that these two diseases can have such similar symptoms - except that ANY inflammation of the lymph system can cause these kinds of cytokines and itchy symptoms.
Austin sent me a text message saying, "Sarcoidosis confirmed." So AUSTIN DOES NOT HAVE CANCER!! Sarcoidosis is perhaps a very annoying disease, but not likely to develop into anything serious. He says it can be associated with bone marrow transplants. So now what? Aspirin?
So glad it isn't cancer. I was waiting for the update and decided to hunt it down!
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Hi
There is much more to know about this. There are some online college courses about that.
My best wishes!
Oscar Reyes
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