What a crazy day! Here's what I did:
- [7:30-1:30] Work.
- [1:40-2:40] Arrive at cardio-thoracic surgery for 2pm consult with surgeon. Wait.
- [2:40-3:00] Consult with surgeon.
- [3:00-3:30] Wait to talk to assistants. They're busy, so schedule appointment for 4:15.
- [3:30-3:50] Go to first floor. Wait to get EKG.
- [3:50-4:10] Drive to other building. Wait to get bloodwork.
- [4:15-4:30] Rush back to cardio-thoracic; have appointment with assistant.
- [4:30-4:50] Have appointment with nurse. The assistant forgot something. Wait for assistant.
- [5:00-5:45] Rush to appointment at AAA to do title transfer with old Lexus owner.
- [5:45-7:00] Drive old Lexus owner home. Then drive back home.
- [7:00-7:40] Have Liz drive me to AAA. Drive motorcycle home.
- [7:40-8:30] Sushi with Liz!
- [8:30-9:40] Emails and blog.
So many things!!! Well, at least I have a nice Lexus and a full belly. Now to study for that final... Ugh...
The funny thing was that I expected the appointment to be like 30 minutes. I totally ditched work today without trying!
Status Update:
My biopsy is scheduled for Friday! Woot! I was worried they might have me waiting for weeks. Of course, that was the time I asked for my finals with the professor... time for another email. Biopsy comes first.
I've got to also head down to the hospital at the break of dawn tomorrow to get a "type and screen." Despite the fact that I just got my blood drawn. Apparently, there is an impenetrable barrier between the internet at the clinic and the internet where I'll have the surgery. Phone lines and carrier pigeons down as well. I need to go there and do it myself.
It'll either be a simple mediastinoscopy (i.e., camera plus tool down throat) or something called "video-assisted thoracic surgery" (i.e., camera incision + forceps incision in chest), which will require an overnight hospital stay. After a small recovery time, Dr. Austin prescribes family and beers to facilitate recovery. If you insist, doctor!
I've also got to reschedule my final for a SECOND time. I think I'm starting to stretch my professor's patience here...
The Tentative Plan:
- If sarcoidosis, then sweet! It could be as simple as taking a few pills here and there and monitoring. So fingers crossed.
- If results are "inconclusive," then it's probably get a different type of biopsy or wait and see. I have no idea.
- If lymphoma, then we're thinking the following:
- See my old oncologist at Stanford and get her opinion. Possibly make my old oncologist my primary oncologist again.
- Possibly fly to New York with Liz and see if we can get an appointment with some of the world experts on relapsed refractory Hodgkin's Lymphoma. Hodgkin's is rare as it is, and since it's so curable, a relapse is very rare. So there's not many experts in that field, I think.
- I've been lined up for a promising clinical trial at Stanford. It involves a type of chemo that targets cells in a special way (Brentuximab and something else). This seems to be a good next option.
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