[4:09pm]
The BMT process has officially started.
Today, I received a dose of Gemcitabine and Vinorelbine (Navelbine). Unlike all the other chemotherapy drugs I will take, these two are the only ones which will be a "normal" dose... I believe Gemcitabine is used for pancreatic cancer, and I have received a comparable dose. Because of this, I expected these drugs to be without side-effects...
I was slightly wrong -- after an hour or so, I got that familiar "delicate stomach" feeling and a headache. The headache may be due to exertion, however -- I can tell that my red counts have been on a slow decline. (A few days ago, I had my counts. I was better than I was pre-transfusion, but still moderately anemic.)
It was nice that the infusions together were under an hour.
Also, I was equipped with a continuous mini-IV pump. Heperin is currently flowing into my catheter at a measly 0.5ml per hour! This is to prevent those pesky blood clots. I have it attached like a fanny pack -- the nurse mentioned holding it like a purse, but what sane male would do that? It's not as bad as I thought; it is pretty portable (only 100ml bag) and maintenance-free.
In fact, the nurse spent quite some time explaining how to control the pump in case of any trouble -- it is very intuitive. She repeated her instructions several times -- I guess some cancer patients are so zonked out that it is necessary. I guess I will be one of them soon enough.
Since today marked the first day of my BMT, many nurses expressed their certainty of a cure or an easy transplant. I found such optimism a little bit disturbing. Firstly, both assertions of certainty are not statistically accurate -- I'd say you need 98% or greater to use the terms "will be" or "certain." Otherwise, I'd recommend "believe," "feel," or "hope."
Secondly, it makes sense that the nurses have a solid grasp of cure rates and problem-free BMTs. This being true, then it seems that the nurses were willfully expressing a false belief of certainty in a positive outcome. I'm sure they believe that I will be cured or do fine, but I doubt their certainty.
So, why were they doing this? Is saying stuff like "you will be fine" the polite thing to do? Will reality be changed by denying uncertainty? OF course not. If anything, I believe that recognizing potential obstacles and challenges will help us deal with the future. I want to be told to expect a "shitty time" and to be reminded that a remission post-BMT is probable, but not certain. I don't want superstition to be a part of my treatment.
Don't get me wrong -- I'm not denying the existence of self-fulfilling prophecies. For example, I believe that going into a test with a positive attitude will yield higher scores. But a positive attitude strengthening the good cells and making the bad cells commit suicide... nah.
Perhaps my lack of faith is a character flaw... but I don't feel that way. I have thought a lot about my spirituality and beliefs through all of this; the prospect of death can do that. Oddly enough, I find my lack of spirituality/faith a source of strength. I am comforted in a grounded and absolute reality, and I find the prospect of nonexistence... peaceful. It certainly didn't bug me before I was born. :P
So, although I may not be certain of the outcome... I am absolutely certain that everything will work out fine in the end. Strange, huh? An absence of faith is a sort of faith in itself.
Anyhow, for good measure, I should probably counter all that philosophy with something superficial... hmm... Oh, I can't have beer anymore! Noooooooooooooooooooooooo... I'm gonna miss that. When I come out of this, I'll probably be a lightweight with my alcohol -- happy with just a six-pack. You betcha!~
Showing posts with label spirituality. Show all posts
Showing posts with label spirituality. Show all posts
Tuesday, October 21, 2008
Thursday, July 31, 2008
[7-31-08] Evening Report
[7:29am]
My Liz just came over and kept me company. What a wonderful person she is (true, the McDonalds helped :P). Anyhow, I'm just constantly amazed with all the support I've received from you all -- it really makes me feel that I'm loved and not alone. So here's to you all!
I'm just about to start the second part of my chemo. Hopefully, this'll go better than the first. Now that the nausea is gone, I just find myself sleepy -- maybe a side effect of anti-nausea meds? Or because my red blood count is below nominal?
You know, in retrospect, the chaplain visiting kind of spooked me a bit. I mean, if you break your leg in the hospital, do you get a chaplain? They are there to address the "spiritual needs" of the patients. If you're obviously going to live, you aren't in a spiritual crisis. So, why do I get a chaplain? Spooky.
[Watching: Hancock]
My Liz just came over and kept me company. What a wonderful person she is (true, the McDonalds helped :P). Anyhow, I'm just constantly amazed with all the support I've received from you all -- it really makes me feel that I'm loved and not alone. So here's to you all!
I'm just about to start the second part of my chemo. Hopefully, this'll go better than the first. Now that the nausea is gone, I just find myself sleepy -- maybe a side effect of anti-nausea meds? Or because my red blood count is below nominal?
You know, in retrospect, the chaplain visiting kind of spooked me a bit. I mean, if you break your leg in the hospital, do you get a chaplain? They are there to address the "spiritual needs" of the patients. If you're obviously going to live, you aren't in a spiritual crisis. So, why do I get a chaplain? Spooky.
[Watching: Hancock]
Labels:
beautiful,
chemo,
hospital,
spirituality
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