"Austin's personality causes him to moderate feelings of happiness, so that he does not feel like he is making the mistake of assuming that things will remain good forever. This is not pessimism, but rather a desire to have his emotional state be rational and acceptable to his intellect."
A quote from one of Barbara's comments. It perplexes me that I cannot deny or verify this... it has the scent of truth, though. Is my level of self-awareness sub-par, or are there insights that aren't so readily available from the inside looking out. I think maybe neither: Barbara just knows me pretty damn well.
Anyways... I'm doing well; getting back into the swing of school. It's funny how school is like a trampoline wall -- the harder you push, the harder it pushes back. Sure, I can make it through school with an easy push... but I *want* to work hard right now... I *need* to... and school, it's pushing back.
But that is what is so great about school. You can *never* do enough studying, so there's always something to do. It's not like a movie or video game -- when it ends, you say to yourself: "Now what?" With learning, it just doesn't end.
I've pretty much forgotten the whole cancer thing. All it means, at this moment, is getting up at a dreadfully early hour and getting zapped for a few minutes. 8 more to go and I'm done.
I get the feeling that this sort of victory is anticlimactic. Funny, that.
As for my memories. Everything was relatively easy, except for the BMT.
The BMT is something I just want to forget forever -- except for those beautiful moments that make me feel love. I remember Barbara playing Chopin on her laptop... talking with Liz via my computer... watching her knit... watching Barbara knit... and, of course, many moments with my Mom. But most especially when she wheeled me outside, late at night, when I was low. Those moments make me smile. They also make me feel guilty for not expressing my love enough... for not excessively iterating my appreciation, gratitude, and love.
But, with the good comes the bad. I try to forget, but whenever I think about it in detail, I end up in an emotional funk for the rest of the evening. Thank god I have a few beers in the fridge and an episodes of House and 24 coming up.
Lastly, now that I have distanced myself from Stanford, I can do what I've always wanted:
Austin's Review of Stanford Hospital
Not being an expert, I can only draw from my experiences from a non-Academic hospital (Alta-Bates) and Stanford.
Surgery:
Stanford: D-
(Surgeries Done: Port Removal, Hickman1, Hickman2)All surgeries were painful and I remember most of the procedure reporting the pain. There was also that time where the nurses were dancing/singing and acting irresponsibly -- they even tried to get me, a drugged patient, to sing. Also, my first Hickman catheter was not installed right and needed to be replaced. But they eventually got it right.
Alta Bates: A
(Surgeries Done: 2 Biopsies, Port Placement) Surgery was a snap; I remember very little, and felt no pain. No complaints!
Inpatient:
Stanford: D
(Inpatient for Chemo, BMT) Some of the nurses were great, some of the nurses weren't as attentive, some just had plain attitude problems. I think, generally speaking, they were understaffed or something. Also, I (and my mom) caught *many* medical slip-ups. The doctors knew their stuff; they did good.
Alta Bates: A+
(Inpatient for ICE) The nurses were AWESOME. Everyone was super friendly and on top of their game. I had the room to myself for both occasions. The only fault is on the referring doctor, for not submitting the chemo orders on time, but that's not their fault.
So, in conclusion, and based on my experiences...
STANFORD HOSPITAL SUCKS
Ah, it feels good to say that. I felt I would jinx myself if I said that while I was visiting campus. Now maybe their treatment did a better job of getting rid of cancer than anywhere else... but if I could do it all over, I'd get my BMT at Alta Bates. Hopefully, of course, on the same regimen.
Ok, enough for now. Bye.
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9 comments:
Hey A - good to hear you're busy and you're so close to finishing rads :0)
The anti-climax feeling is not by any means uncommon. Wullie is STILL stung by that feeling from time to time and I've heard many others say similar things....but it must pass at some stage?
And I suspect your family and friends know your love without you having to use words to express it.....so I wouldn't beat yourself about that! Keep doing what you're doing.........good to hear from you..........Vx
Update on Austin...
In general he is well. After he finished his radiation, he had a week of fever. He saw a doctor, and they did a lot of tests, but did not find anything in particular. The fever faded gradually. He also noticed some reduction in lung capacity, or easily getting out of breath when exercising. Considering the radiation treatment, perhaps he had some lung tissue damaged, which would probably lead to some fluid retention in that region, but that's just my nonmedical guess. In a few weeks he will get another PET scan.
Other than that, he is continuing in school and all is well. Keeping very busy. There is some nice news on a personal front too, but I won't mention it here.
Austin came by this weekend to hang out with us, though he also spent time working on his class software project, which is as you might guess, a game. It is amazing to see this child of mine creating works of enormous technical complexity.
His hair is in, and has a baby-like texture, soft with curls. It is hard not to pet him like a puppy. He looks healthy and has regained much, but not all, of his strength and stamina.
Austin and Liz just returned from a trip to Hawaii. They had a great time!
Austin is on summer vacation. His new haircut looks good, though he still has the fine hair of a much younger Austin. We had a family reunion, including his grandmother on my side of the family, and it was a great time. He wants to get his motorcycle fixed and running again. It is an oddly conflicting thought that perhaps he is more at risk of harm from traffic accidents now than cancer. However, he is the safest motorcyclist I have ever seen, and should be giving lessons to others. Including me.
Austin remains in good health as far as we can tell. He has started his last semester at UC Berkeley, and is under a lot of pressure. He is also preparing a portfolio of work to present as part of his application for the Masters Degree program he is interested in. We are all grateful to see him fully engaged in life.
Thought I'd check in, although I was taking the approach 'no news is good news', it's good to read updates via Skymist! Thank you - and here's to a full, healthy, accomplished life..........Vx
All is well! Thanks for checking, V!
One interesting thing. Before the AHSCT (the transplant) we had the impression he would have a very vulnerable immune system and would catch every possible cold and flu and be sick all the time until he built up some new immunity. However, he seems to have surprising resistance to viral infections now. I don't see him spending much time being sick with colds and flu at all. I don't understand that very well.
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